Reminders

Just when I think….yah I can handle all this, I am reminded that things will never be how dreamed they would for our family.

I am sensitive to the word retarded.  Don’t use it in fun…it’s not funny.  Don’t make jokes about, “It’s like having a retarded child around.” Don’t say things (even if it’s on Facebook) that make fun of a disabled person (especially when that person has down syndrome).  These things hurt!

I am reminded when I take Jocelyn to a new doctor and instead of skimming all the way down all the boxes and checking, no, no, no. I have to read slowly and carefully and check a whole lot of yes’. Then do a whole lot of explaining. It still hurts.

It hurts, but I am beginning to chuckle….every time someone tells me how sleepy Jocelyn looks.  NO she is not sleepy she has down syndrome and that the way her eyes look!  Seriously, wouldn’t you feel awful if you told me that my child looked sleepy and I responded, “No, she has down syndrome!” I just nod and say “Yep, she’s really sleepy.”   

All little reminders that our sweet Jocelyn Rose has Down Syndrome.  But we can handle this.  The number of reminders each day of how precious Jocelyn and Abby are make most of the hurt go away…..

 

Jumping in a big container of corn at the Harvest festival:)

Hanging out with Mama!

  

Jocelyn’s token smile will always put a smile on your face!

 

Celebrating Bis Nonno’s 89th Birthday

Jocelyn’s OBCESSION with drinking glasses!  I love that this picture captures her going after a wine glass:)

Singing Happy Birthday to Bis Nonno with a few of the great grandkids and grandkids.

The sweet calm love Jocelyn has for her Bis Nonno when he hums her a song.

 

The joy that Jocelyn brings to her Bis Nonno and Bis Nonna.

Great thing #1 for the week: I had my first appointment with a FABULOUS new pediatrician for the girls.  They were so wonderful with Jocelyn.